Data Catalog

The Hispanic Community Health Study / Study of Latinos (HCHS/SOL) is a multi-center epidemiologic study in Hispanic/Latino populations to assess the role of acculturation in the prevalence and development of disease, and to identify factors playing a protective or harmful role in the health of Hispanics/Latinos. The target population of 16,000 persons of Hispanic/Latino origin, specifically Cuban, Puerto Rican, Dominican, Mexican, and Central/South American, were recruited through four Field Centers in Miami, San Diego, Chicago and the Bronx area of New York. During 2008-2011 study participants aged 18-74 years underwent an extensive clinic exam and assessments to determine baseline risk factors. Annual follow-up interviews are conducted to determine health outcomes of interest. During the 2014-2017 second clinic visit (Visit 2) participants were re-examined to again collect data predictive of various health outcomes of interest. In addition, a comprehensive reproductive history of women of childbearing age was assessed. The third clinic operations aka "visit" began January 2020 and will conclude in early 2023. HCHS-SOL provides the prevalence of 5 major, readily measured biomedical CVD risk factors (high serum cholesterol and blood pressure levels, obesity, hyperglycemia/diabetes, cigarette smoking), adverse CVD risk profiles (combinations of CVD risk factors), and CVD (coronary heart disease [CHD] and stroke) among US Hispanic/Latino adults of diverse backgrounds.

The National Survey of American Life (NSAL) is a study designed to explore racial and ethnic differences in mental disorders, psychological distress, and informal and formal service use from within the context of a variety of presumed risk and protective factors in the African-American and Afro-Caribbean populations of the United States as compared with White respondents living in the same communities. The NSAL is part of the Collaborative Psychiatric Epidemiology Surveys (CPES) data collection.

The Large Truck Crash Causation Study (LTCCS) is based on a 3-year data collection project conducted by the Federal Motor Carrier Safety Administration (FMCSA) and the National Highway Traffic Safety Administration (NHTSA) of the U.S. Department of Transportation (DOT). LTCCS is the first-ever national study to attempt to determine the critical events and associated factors that contribute to serious large truck crashes allowing DOT and others to implement effective countermeasures to reduce the occurrence and severity of these crashes. The LTCCS documents 1,070 major crashes with approximately 1,000 variables on each crash obtained through driver, passenger, and witness interviews; crash scene, truck, and driver inspections, police reports; hospital records; and coroners' reports.

The Developmental Disabilities Institute at Wayne State University, in collaboration with the United Cerebral Palsy Association in Michigan, conducted a one-year study to investigate the prevalence and correlates of, and service system capacity related to, domestic abuse among women with physical disabilities in Michigan. The study aimed to address the following research questions: (1) What is the prevalence of domestic violence among a sample of women with physical disabilities? (2) What potential factors for domestic violence exist among women with physical disabilities? and (3) What is the capacity of existing support programs (e.g., safe houses, shelters, and service agencies) to assist women with physical disabilities? The population for this study was women over the age of 18 who had physical disabilities.

The Pediatric Participant Use Data File (PUF) is a Health Insurance Portability and Accountability Act (HIPAA)-compliant data file containing cases submitted to the American College of Surgeons National Surgical Quality Improvement Program Pediatric® (ACS NSQIP Pediatric®). The PUF contains patient-level, aggregate data and does not identify hospitals, health care providers, or patients. The ACS NSQIP Pediatric collects data on approximately 120 variables, including preoperative risk factors, intraoperative variables, and 30-day postoperative mortality and morbidity outcomes for patients undergoing major surgical procedures in both the inpatient and outpatient setting. The intended purpose of this file is to provide researchers at participating sites with a data resource they can use to investigate and advance the quality of care delivered to the surgical patient through the analysis of cases captured by ACS NSQIP Pediatric. Additional procedure-specific PUFs are available for appendectomy, spinal fusion, and cerebrospinal fluid shunt.

The Maternal Lifestyle Study (MLS) was the largest of the NIH longitudinal studies of children with prenatal cocaine exposure (PCE). MLS was a longitudinal multi-site observational study of the long-term effects of in-utero exposure to cocaine on child development. MLS was conducted at four geographically diverse, collaborating university centers (Wayne State University, University of Tennessee at Memphis, University of Miami, and Brown University). Participants were identified during the newborn period while in the hospital. The MLS began enrollment of a longitudinal birth cohort of 1,388 infant/mother dyads in 1993. Subjects in the follow-up were seen from 1 month of age through 16 years of age. The overall purpose of the study was to investigate the effects of drug use during pregnancy on acute neonatal events and long-term physical health, social, behavioral and neurodevelopmental outcomes.